I KNOW my posting is spotty, but life sometimes interferes. It's been a bad week here at the old casa de seizure. Kels is on a new anti-depressant and I believe she is having some interaction with it. I have put a call in to her new psychiatrist and we will see about changing or adjusting.
I am in school right now and one class that I have this semester calls for a live, oral presentation -- subject of our choice. My choice (of course!) was seizure disorder (got to talk about what you know, right?). More specifically, depression rates in patients with seizure disorder. Even though epilepsy is one of the most common neurological disorders, it is very poorly recognized. People with epilepsy, especially Kels's kind of intractable epilepsy, have a nearly 30% higher rate of depression that any other disease group, including cancer. Sometimes I believe that all the "extra" things that come with a diagnosis of seizure disorder are much, much worse than the seizures themselves.
Yesterday's meltdown was bad -- probably one of the worst I've seen in her yet. Quite frankly, it scares me. I can deal with the physical part of seizures -- I've dealt with it for years. Losing my daughter mentally is something that I don't know how to fight.