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Tuesday, February 8, 2011

Epilepsy Update

We had the quarterly visit with the neurologist today. Bottom line is that Kels has once more lost decent control of her seizures. We're at a holding pattern - brain surgery, VNS implant, scores upon scores of drugs (Keppra, Dilantin, Carbotrol, Tegretol, Zonegran, Lamictal, Lyrica, etc.) and nothing has worked for her. This is her life and could very well be her lot for the rest of her life.

At today's visit, she looked at her doc and asked, "Why do I keep losing control?" His answser? Due to the ever changing nature of seizure disorder in some patient, they have no idea. My question was, "Will she ever gain and keep seizure control?" His answer? No idea.

I want so badly for my baby to have a normal life. This is the normal, though. And it sucks.

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